LGS FoundationCaregiver Companion

User Manual

How to use the LGS Caregiver Companion

Welcome! This app helps caregivers of individuals with Lennox-Gastaut Syndrome (LGS) track symptoms, manage medications, prepare for doctor appointments, and access support resources — all in one place.

Caregiver Journal

The journal is your daily log. Use it to track how your loved one is doing over time.

1

Tap 'Caregiver Journal' from the home screen.

2

Choose an entry type: Quick Check-In, Event Log, Note, Medication Log, Symptom Tracker, or Caregiver Well-being.

3

Fill in the details and tap Save. Your entry is stored securely.

💡 Tip: Daily Quick Check-Ins take under a minute and help build a trend over time.

Medication Reminders

Set up reminders so you never miss a dose.

1

Go to Journal → Medication Reminders.

2

Tap 'Add Reminder' and enter the medication name, dosage, and schedule (daily times or every N hours).

3

When it's time to give a dose, tap 'Taken' on the reminder card. This automatically logs it in the journal.

Symptom Tracker

Log specific seizure types, duration, and severity.

1

Go to Journal → Symptom Tracker.

2

Select the seizure type (e.g., tonic, atonic, absence).

3

Enter duration, severity (1–5 scale), any triggers, and interventions used.

⚡ Scales: 1 = mild/short, 5 = severe/long. Be consistent so trends are meaningful.

Trends

View charts of your journal data over time to spot patterns.

1

Tap 'Trends' from the home screen header.

2

Select a time range (7, 14, or 30 days).

3

Review symptom averages, event frequencies, and medication effectiveness charts.

Appointment Summary

Generate a ready-to-share report for your doctor.

1

Go to Journal → Generate Appointment Summary.

2

Choose the time period and check any top concerns.

3

Tap 'Generate Summary.' You can copy it or download it as a PDF to bring to your appointment.

Safety & Emergency Info

Keep critical emergency information accessible at all times.

1

Tap 'Emergency' from the home screen header.

2

Enter your neurology team's phone numbers, emergency instructions, and seizure triggers.

3

This information is available at a glance whenever you need it quickly.

Emotional Support & Caregiver Well-being

Caregiving is hard. This section is for you.

1

From the home screen, tap 'Emotional Support' to access mood check-ins and community resources.

2

Use 'Caregiver Well-being' in the journal to log your own mood, energy, and sleep.

3

Your well-being matters — track it just like you track your loved one's health.

AI Assistant

Ask the built-in AI assistant questions about using the app or general LGS information.

1

Tap the chat bubble icon (💬) in the top navigation bar.

2

Type your question and tap Send.

3

The assistant responds with helpful guidance.

⚠️ The AI assistant provides general information only — not medical advice. Always consult your healthcare team for clinical decisions.

Need more help? Contact your care team or visit our support resources from the home screen.